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Agnes, age 25
UC Managing My Life
After being diagnosed with UC two years ago, I have been in a constant struggle to regain my normal life. During flares, the terrible pain and constant trips to the bathroom are debilitating, easily discouraging, and depressing. There have been times I've had to take nine pills each day. The large amounts of pills reminded me every single day of my illness. By having treatments that aren't easy, discrete or simple, your condition is made so much worse, because your hope is taken away. In addition to the time spent suffering, your life can be taken up with the time spent visiting clinics, getting the right prescriptions, and battling with health insurance issues. Suddenly, your life is controlled by UC-worrying about what medications you have to take and when.
Me Managing My Life
My GI physician and I have always been on the same page about my desire to manage my disease, and he has instilled in me the necessity of positive thinking. Managing the disease doesn't mean that you no longer have it, but you may be able to live your life without the fear of flares. I still have to take multiple pills, which is a continuous reminder of my disease. It's not easy, and there are times when it gets confusing, but I work hard and devise systems to help keep me on track with my medications. No matter what happens, I know I will be okay and do well. I also have the motivation to help others with UC.
This is one person's experience. |
